Today is a special day for me. On this day in 2016 and 2017, I left Bearhands and my babies to head to Brisbane to have treatment for MS. For those two years I had a form of chemo that wiped out my ...
you can't sugar coat MS
5 things every newly diagnosed MS patient should know
I remember how terrified and uncertain I felt in the first days after I was diagnosed with MS. This is what I wish I could tell every newly diagnosed MS patient.... Being diagnosed with MS is a ...
you can’t sugar coat MS, an update
Last Tuesday I found myself sitting my neurologist's waiting room alone. In my horrible gastro haze I'd muddled my appointment time and arrived thirty minutes late. The receptionist made no attempt ...
you can’t sugar coat MS | house arrest day 21
I needed a little lift yesterday. I haven't been sleeping very well - I suspect some of the anti-viral medicine I'm taking doesn't agree with me. I wake up in the middle of the night, heart ...
you can’t sugar coat MS | house arrest day 7
This time last week I was finishing my final day of treatment. My heart rate had reached olympic athlete levels again, prior to the infusion, but I'd managed to nurse it through with a combination ...
Amanda and the terrible, horrible, no good, very bad days
I’m starting my second course of treatment this morning. I spent much of last week begrudgingly preparing for spending this time away from the farm shopping and writing lists for my wonderful ...