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    Home Β» you can't sugar coat MS

    By Amanda Smyth 9 Comments

    you can't sugar coat MS | house arrest day 21

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    I needed a little lift yesterday.

    I haven't been sleeping very well - I suspect some of the anti-viral medicine I'm taking doesn't agree with me.

    I wake up in the middle of the night, heart pounding, head sweaty having another nightmare. I also have a constant low level headache. And while it's not excruitating, it just enough to make everything feel like a chore.

    This week has been dedicated to sorting out end of financial year stuff for the farm and catching up on jobs I haven't got to since I had treatment. I've spent hours on the phone. Talking is not what I like to use my phone for. Especially when the girls always seem to find a reason to argue the moment I answer the phone.

    Nothing's wrong, I'm just tired and cranky.

    Then yesterday afternoon I got to have a conversation I really wanted to have. A chat with my neurologist's office to learn that there were no new lesions on my latest MRI. Its an enormous relief and goes some way to confirming my suspicion that the last lesion was a pre-treatment arrival.

    Just the shot in the arm I needed and a little reminder to continue to expect my miracle.

    I have a sign in my office that says "hold the vision, trust the process". Being in business is full of ups and downs, and the sign is there to remind me that a rough patch doesn't mean that the goal posts have moved. It applies equally to my treatment.

    hold the vision, trust the process, believe

     

    how's this week treating you?
    ever just had to keep the faith?

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    Reader Interactions

    Comments

    1. Jan says

      June 29, 2017 at 1:46 pm

      wonderful news ands a real lift for you.

      Reply
      • Amanda Smyth says

        June 30, 2017 at 8:50 am

        Thanks Jan. It's a real relief. πŸ™‚

        Reply
    2. Sammie @ The Annoyed Thyroid says

      June 29, 2017 at 3:33 pm

      Such wonderful news and I love that quote. During my treatment, the one important lesson I learned was to always believe the best case scenario rather than trying to worry myself about the worst. In my experience, the faith is always worth keeping.

      Reply
      • Amanda Smyth says

        June 30, 2017 at 8:50 am

        Worrying seemed to make my symptoms worse during my last relapse Sammie, so I think you're right. Picturing the best case scenario is the way forward! πŸ™‚

        Reply
    3. Valmai Sellers says

      June 29, 2017 at 5:52 pm

      Great news Amanda! don't be too hard on yourself. You are coping with a lot. Your busy lifestyle is hard but hopefully you will gradually getting your strength and energy levels back. So proud of all you have achieved so far on your journey. my thoughts and prayers are with you.

      Reply
      • Amanda Smyth says

        June 30, 2017 at 8:49 am

        Thanks Valmai. It's such a relief that we seem to be on the right track. Long may it continue! πŸ™‚

        Reply
    4. Seana Smith says

      June 30, 2017 at 4:07 pm

      Yes, yes, yes to keep the faith. It's always SO good to focus on the best positive outcome and think about that. There's plenty of time for the bad stuff when it's happening. No need to give it space until it's actually there in front of us.

      Thanks goodness for good science and research and treatment.

      Reply
    5. Sue R says

      August 04, 2017 at 4:14 pm

      I'm really happy for you Amanda. If you need a break come visit up north. We could spend a day/night at Magnetic Island. I'm going for a short visit in hospital myself in a week. Hope they find nothing wrong.

      Reply
      • Amanda Smyth says

        August 08, 2017 at 9:12 am

        Magnetic Island has such fun memories for me Sue - that's where I caught the snorkelling bug! I have my fingers crossed for you that your hospital stay goes smoothly and you're home and back to health quickly. A x

        Reply

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