This time last week I was finishing my final day of treatment.
My heart rate had reached olympic athlete levels again, prior to the infusion, but I’d managed to nurse it through with a combination of caffeine, sugar and sheer terror of a repeat performance of last year.
I almost cried tears of relief as I watched the last five millilitres flow through the drip, then Mum and I snuck into the corridor and recorded a little cheeky message for MS.
I can’t tell you how good if feels to be sitting here, a week later, without the shadow of another year of treatment hanging over my head (although, if more squatters arrive we’ll have to consider it).
My hives – a common side effect of Lemtrada – have subsided and while the worst of the tiredness is likely still to come, I’m feeling good.
This is in no small part due to the incredible team I have supporting me. So indulge me please while I send…
…a huge thank you to:
My wonderful in-laws who helped Bearhands and the girls while I was away.
My own wonderful Mum who took me to hospital every day, made me cups of tea and tummy-calming soup.
Tracey and the team at the Internal Medicine Day Treatment Unit at the RBH.
Bearhands who knows how to make even the most tired woman laugh.
Finally thank you to everyone who sent messages of support over the last weeks. I’ve really been feeling the love.
Here’s hoping MS gets my message!
how are things in your neck of the woods?
what did I miss while I was gone?
Much love Amanda.
Well, you didn’t miss anything chez nous… very quiet life here. So glad this is over for you and that you were well supported whilst doing this treatment. Here’s to more good research and more treatments… and a quite life ahead for you and yours.
Phew so glad it’s over. I love that your village has your back and I bet they’re thrilled to have you back too. Wishing you happy, healthy days ahead! x