I finished treatment on Friday. There were a few hiccups in the last few days. On Thursday my heart rate slowed by half and I was pretty unwell. I fronted up on Friday worried about a repeat performance that didn't eventuate. Lucky for me I was covered wall to wall in hives to distract me from my ticker! This week I'm discovering that I'm not very interested in my normal activities. I've ...
Gardening
expect a miracle
Yesterday was Day 2 of this year's five days of treatment. I'm not too worse for wear, which is wonderful. The side effects tend to be cumulative, so I'm not counting my chickens but I am expecting a miracle. About a month ago, I went to the GP for some compulsory pre-treatment screening. We frankly discussed the success rate of the treatment and how it doesn't work for everyone. I left the ...
thank fac for smart people
Don’t worry Mum, that title says fac. It’s colloquial French for university. Yes, I know what it looks like. Yes, I meant it. No, I don’t think anyone will think less of me for it. Cool? The Little Sister was making churros and ice cream sundaes on the iPad behind us while the Neurologist listed our options. Yes it was Multiple Sclerosis. Yes it was time for treatment. Injections, they’re ...
introducing Baby David
I fidgeted for much of last Thursday. I couldn’t sit still, I felt sick with worry. Ant and Flic were at the hospital. Their baby was on the way. When I looked up from constantly checking my phone for news, I thought the sunset was giving me a big gender clue about the pending arrival. I cried tears of relief when Anthony phoned to tell me the baby had arrived safely. If the past five years have ...
a hell of a MS
My first thought after being diagnosed with MS was "but I want to grow old with my husband". Immediately I imagined losing the ability to look after myself and winding up in an old people's home while my family were left to continue life at home without me. Then I cried big ugly tears while my GP said kind, compassionate things about how good the treatments are these days. It had started as a ...
how to make butter
This week saw me tagging along with the Little Sister to kindergarten to teach her kindy mates how to make butter. The class have been growing corn in their veggie patch so making butter to spread on homegrown steamed corn seemed like the perfect plan. The kids got really into it and we super proud of their efforts. The corn was delicious and its my understanding some of them (Little Sister) came ...